Cary had his redundant colon removed at the end of September in Minnesota. They took out almost five feet. He had been up and down since then also catching any bug in the air it seems. He's also been in hospital for poorly functioning pituitary. His body not regulating water properly and he gets dehydrated. This time he's been in the hospital for really bad cdiff infection. But now he's not. Regulating water again and has abdmomen pain we are suspecting the colon got twisted up possibly after last vomiting spell or maybe torn hernia? We are waiting for gi consult.

? ng very well. It's almost a year to date from transplant. He's had quite a few bumps in the road but I have a good feeling we may be going uphill soon...

? Thank you for thinking of us

? Hopefully this is the last surgery. Cary had almost 5 ft of colon removed. There were lots of sections where the colon was extremely large. He's recoveri

Cary still in icu. We are waiting to get moved to a regular room. He looks better today. This will make it easier for me to leave him and go back to Texas tomorrow. He says his pain is still high, but despite that he's moved around and taken a couple of walks today. Thank you for thinking of us.

Cary in icu for no apparent reason. They haven't been able to bring pain below 8. They didn't want to try new med until morning so he's got a rough night ahead. I pray for a really nice night nurse.

Hi folks. Carys went in or about 8am. Dr just came out almost 3 hours later said they are still working on him but they are not wanting to remove colon. They are worried about excessive complications. He's gonna do the roux
En y only and maybe Cary won't need the colon removal if he does he would do it in about 6 months. I think he probably wants to see if Cary can do without it. I'll post more when I learn more. Thank you for your prayers they are very precious to us.

Howdy folks!
It's hard to believe I pack tomorrow to leave for Minnesota on Saturday (I work 12 hours thurs, Friday). Yes my children will be motherless on mothers day, which isn't abnormal for our family. Cary will be having surgery Monday, lord willing. I believe he is opting out if the redundant colon removal and just having the R-Y. I don't believe it will be as intense. Most certainly not like what we went thru in October. He has gained enough weight to back in the normal weight category!!! I hope and pray they can take and keep out the feeding tube.

God bless you and keep you. Amanda

They decided Cary needs another surgery to correct this. They will I think... Reconnect the bile duct further down the intestine using intestine. This is to prevent the backflow of bile into his stomach. He also has redundant colon which they would like to remove a lot of to help with the food retaining back into his stomach. This is scheduled for may 10th. I have taken a pharmacy manager position with my company. This store is located in my hometown. I could not refuse this offer. After struggling with incredible help from others with which we are so grateful, I needed more help. Plus with my moms health I am determined to work with the doctors to push for answers to her ailments. It's been too long with no answers. Cary can't leave Indiana until the house sells and he establishes a doctor down here. This tasks may be more difficult and prayers are always appreciated. He had Timothy in Indiana but was unable to even stay home alone with him so ges currently bringing him down to me in Texas via train. Thank you so much for thinking of us . Our cup overflows. Please pray for our family as we are split up and for upcoming surgery and medical care down here. Carys islet cells were transplanted onto the major vein in the liver and seem to be functioning well so far. He uses very minimal amounts of insulin.

So much has happened since my last post... The feeding tube went in with complications but carys coped. He has been able to gain weight and is up from 118 pounds to 145!!! This is very exciting. He still has the feeding tube because of the vomiting and bile he needs to drain.