Cary had his redundant colon removed at the end of September in Minnesota. They took out almost five feet. He had been up and down since then also catching any bug in the air it seems. He's also been in hospital for poorly functioning pituitary. His body not regulating water properly and he gets dehydrated. This time he's been in the hospital for really bad cdiff infection. But now he's not. Regulating water again and has abdmomen pain we are suspecting the colon got twisted up possibly after last vomiting spell or maybe torn hernia? We are waiting for gi consult.

? ng very well. It's almost a year to date from transplant. He's had quite a few bumps in the road but I have a good feeling we may be going uphill soon...

? Thank you for thinking of us

? Hopefully this is the last surgery. Cary had almost 5 ft of colon removed. There were lots of sections where the colon was extremely large. He's recoveri

Cary still in icu. We are waiting to get moved to a regular room. He looks better today. This will make it easier for me to leave him and go back to Texas tomorrow. He says his pain is still high, but despite that he's moved around and taken a couple of walks today. Thank you for thinking of us.

Cary in icu for no apparent reason. They haven't been able to bring pain below 8. They didn't want to try new med until morning so he's got a rough night ahead. I pray for a really nice night nurse.

Hi folks. Carys went in or about 8am. Dr just came out almost 3 hours later said they are still working on him but they are not wanting to remove colon. They are worried about excessive complications. He's gonna do the roux
En y only and maybe Cary won't need the colon removal if he does he would do it in about 6 months. I think he probably wants to see if Cary can do without it. I'll post more when I learn more. Thank you for your prayers they are very precious to us.

Howdy folks!
It's hard to believe I pack tomorrow to leave for Minnesota on Saturday (I work 12 hours thurs, Friday). Yes my children will be motherless on mothers day, which isn't abnormal for our family. Cary will be having surgery Monday, lord willing. I believe he is opting out if the redundant colon removal and just having the R-Y. I don't believe it will be as intense. Most certainly not like what we went thru in October. He has gained enough weight to back in the normal weight category!!! I hope and pray they can take and keep out the feeding tube.

God bless you and keep you. Amanda

They decided Cary needs another surgery to correct this. They will I think... Reconnect the bile duct further down the intestine using intestine. This is to prevent the backflow of bile into his stomach. He also has redundant colon which they would like to remove a lot of to help with the food retaining back into his stomach. This is scheduled for may 10th. I have taken a pharmacy manager position with my company. This store is located in my hometown. I could not refuse this offer. After struggling with incredible help from others with which we are so grateful, I needed more help. Plus with my moms health I am determined to work with the doctors to push for answers to her ailments. It's been too long with no answers. Cary can't leave Indiana until the house sells and he establishes a doctor down here. This tasks may be more difficult and prayers are always appreciated. He had Timothy in Indiana but was unable to even stay home alone with him so ges currently bringing him down to me in Texas via train. Thank you so much for thinking of us . Our cup overflows. Please pray for our family as we are split up and for upcoming surgery and medical care down here. Carys islet cells were transplanted onto the major vein in the liver and seem to be functioning well so far. He uses very minimal amounts of insulin.

So much has happened since my last post... The feeding tube went in with complications but carys coped. He has been able to gain weight and is up from 118 pounds to 145!!! This is very exciting. He still has the feeding tube because of the vomiting and bile he needs to drain.

Back From Minnesota

What a blessing our Minnesota church family is to us. It was a rough week for Cary and still is. Tuesday they ran a hiatus scan, to check and see if his bile duct was backflowing bile into the stomach. This would explain all the nausea and vomiting. The exam confirmed some backflow. He had a gastroenema? sp. They were looking for megacolon, to have documentation for insurance purposes for the recommended intestine surgery. This test also confirmed what the doctors saw when they did the transplant surgery. So, the Dr. recommends doing the surgery int he future to repair both problems. The primary issue is getting some nutrition. While we were there for his follow up to the transplant, they scheduled to place a feeding tube. There were some complications with this, as Cary is vomiting up huge amounts of liquids. It seems his stomach is unable to empty and has to vomit. The strange part is none of the drains out of the G-tube (stomach tube). He has started his nutrition through the J=tube (intestine tube). He has to work up the volume so his intestine adjust accordingly. We left Minnesota today, knowing we would probably be putting him in the hospital when we got home. The family Dr is expecting to see him in the morning, unless he gets dehydrated and we end up in ER tonight. We're hoping it will resolve itself. Thank you for your prayers. We were so blessed the weather was wonderful, bright and sunny the whole way home and roads were great too.

We thank GOD for taking care us and hope to see some improvements in Cary...
God Bless,
Amanda

After digging around 4 different times they gave up and decided to use ultrasound. I tried to use suttle hints like "must be a roller huh" "Cary you ok? He's been digging in you for a while now" Cary is a much more patient patient than I. They've dug seventeen times before, but not today. They are putting in the feeding tube. The dr expects to send him home. I will posts later on the findings from his exams yesterday. I told Cary he glows in the dark from all the nuclear stuff he had yesterday....God is good, very good to us.